Self Advocacy - It is important, once you hear the words "you have cancer" for you to become your own best advocate. In order to receive the best medical care possible, knowledge and proactivity are necessary. Learn all you can about your diagnosis, treatment options, and medical team. Set goals and communicate with your treatment team to ensure that all those involved in your care are on the same page. Get second opinions when necessary and be armed with questions that will help you to create a care plan. Empower yourself and your friends and family with the information and inspiration to help you along the way.
Take Action - Advocacy is about promoting change and taking the initiative to help create that change. These are easy steps that will help you discover how your own circumstances lay the groundwork for sharing your voice. Nearly 300,000 Americans are diagnosed with liver tumors each year, however, only 5% of research funding is spent on ALL of metastatic disease. Awareness helps ensure that those of living with liver tumors become a priority. Stand up. Be counted!
Congressional Briefing - The Congressional Briefing allows patients, caregivers, health care professionals, and patient advocacy representatives to better understand the healthcare system and to take part in the legislative process by meeting with their leaders in Washington. They will advocate for legislation that guarantees improved patient resources, access to care, and awareness of problems faced by those living with cancer metastatic to the liver